Is this the year we find the cure for Parkinson's Disease? HOPE
Thursday, December 31, 2009
Tuesday, December 29, 2009
PDF IN 2009
HELPING TO GET TO THE GOAL
EXCERPTS FROM PDF
PDF’s Top Ten List 2009
Funded $5 million through our diverse research programs to support the best scientific investments in Parkinson’s, including three leading Parkinson’s research centers and 24 individual investigators.
Continued our commitment to training future leaders in Parkinson’s through our Fellowship and Career Development Programs, which supported 42 fellowships for researchers, clinicians and medical students.
Remained responsive to new and existing research opportunities, including awarding $300,000 in emergency bridge funding to four leading Parkinson’s scientists and ramping up support for the promising Longitudinal and Biomarker Study in PD (LABS-PD) Project.
Advanced the state of clinical research to improve the development of new therapies for Parkinson’s by preparing 37 people with Parkinson’s to become clinical research advocates through our Second Clinical Research Learning Institute and by laying groundwork, through a series of roundtable discussions, for a clinical study to investigate the therapeutic potential of exercise.
Hosted a new series of online educational programs to ensure all people with Parkinson’s have access to the latest information from the leaders in the field. The seven programs attracted almost 7,000 registrants.
Advised, through our National HelpLine and Ask the Expert service, thousands of people with Parkinson’s, family members and health care professionals from all 50 states and six continents, on issues relating to diagnosis, treatment, caregiving and more.
Distributed 50,000 free educational publications to people around the US and around the world, to ensure people with Parkinson’s are armed with the facts and resources they need to live well.
Celebrated our fourth year working with our People with Parkinson’s Advisory Council, a group of 13 individuals who advise PDF on its programs.
Recommitted ourselves to our new financial assistance program (established in 2008 with an annual $50,000 grant to the Melvin Weinstein Parkinson's Foundation) for people with Parkinson’s to cover emergency needs, such as the purchase of wheelchairs, walkers and canes as well as home care and other assistance.
Was rated a Four-Star Charity by Charity Navigator, making PDF the only Parkinson’s Charity to receive both this and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).
In 2010, with your help, PDF will continue to support you and your loved ones with Parkinson’s through our research, education and advocacy programs. Your gift, if given before December 31st, will also give you the benefit of a tax-deduction on your 2009 return.
Please accept our appreciation for your support and our best wishes for a happy and healthy new year.
Robin Anthony Elliott
If you have or believe you have Parkinson’s disease, then promptly consult a physician and follow your physician’s advice. This email is not a substitute for a physician’s diagnosis of Parkinson’s disease or for a physician’s prescription of drugs, treatment or operations for Parkinson’s.
www.pdf.org |Contact Us|PINS Helpline: (800) 457-6676
© 2009 Parkinson’s Disease Foundation, Inc.
EXCERPTS FROM PDF
PDF’s Top Ten List 2009
Funded $5 million through our diverse research programs to support the best scientific investments in Parkinson’s, including three leading Parkinson’s research centers and 24 individual investigators.
Continued our commitment to training future leaders in Parkinson’s through our Fellowship and Career Development Programs, which supported 42 fellowships for researchers, clinicians and medical students.
Remained responsive to new and existing research opportunities, including awarding $300,000 in emergency bridge funding to four leading Parkinson’s scientists and ramping up support for the promising Longitudinal and Biomarker Study in PD (LABS-PD) Project.
Advanced the state of clinical research to improve the development of new therapies for Parkinson’s by preparing 37 people with Parkinson’s to become clinical research advocates through our Second Clinical Research Learning Institute and by laying groundwork, through a series of roundtable discussions, for a clinical study to investigate the therapeutic potential of exercise.
Hosted a new series of online educational programs to ensure all people with Parkinson’s have access to the latest information from the leaders in the field. The seven programs attracted almost 7,000 registrants.
Advised, through our National HelpLine and Ask the Expert service, thousands of people with Parkinson’s, family members and health care professionals from all 50 states and six continents, on issues relating to diagnosis, treatment, caregiving and more.
Distributed 50,000 free educational publications to people around the US and around the world, to ensure people with Parkinson’s are armed with the facts and resources they need to live well.
Celebrated our fourth year working with our People with Parkinson’s Advisory Council, a group of 13 individuals who advise PDF on its programs.
Recommitted ourselves to our new financial assistance program (established in 2008 with an annual $50,000 grant to the Melvin Weinstein Parkinson's Foundation) for people with Parkinson’s to cover emergency needs, such as the purchase of wheelchairs, walkers and canes as well as home care and other assistance.
Was rated a Four-Star Charity by Charity Navigator, making PDF the only Parkinson’s Charity to receive both this and the Charity Seal of Approval from the Wise Giving Alliance of the Better Business Bureau (BBB).
In 2010, with your help, PDF will continue to support you and your loved ones with Parkinson’s through our research, education and advocacy programs. Your gift, if given before December 31st, will also give you the benefit of a tax-deduction on your 2009 return.
Please accept our appreciation for your support and our best wishes for a happy and healthy new year.
Robin Anthony Elliott
If you have or believe you have Parkinson’s disease, then promptly consult a physician and follow your physician’s advice. This email is not a substitute for a physician’s diagnosis of Parkinson’s disease or for a physician’s prescription of drugs, treatment or operations for Parkinson’s.
www.pdf.org |Contact Us|PINS Helpline: (800) 457-6676
© 2009 Parkinson’s Disease Foundation, Inc.
Saturday, December 19, 2009
STORM TRACKER
It is Friday night 12/18/2009.
All you hear about on the news (east coast U.S.A.) is storm warnings and watches. Predictions of the worst in 43 years for a pre-Christmas winter storm.
As I see it not all predictions come to pass. We have been in an economic storm for over two years. Not all predictions come to pass.
Some say the storm has passed.
Some say the storm continues.
Some say the storm is getting worse.
Some say the storm is getting better.
Some say, "what storm"????
It all depends on where you stand, sit, or whatever.
I guess we will see.
All you hear about on the news (east coast U.S.A.) is storm warnings and watches. Predictions of the worst in 43 years for a pre-Christmas winter storm.
As I see it not all predictions come to pass. We have been in an economic storm for over two years. Not all predictions come to pass.
Some say the storm has passed.
Some say the storm continues.
Some say the storm is getting worse.
Some say the storm is getting better.
Some say, "what storm"????
It all depends on where you stand, sit, or whatever.
I guess we will see.
PARKINSON'S--THAT FICKLE DISEASE
fickle |ˈfikəl|
adjective
changing frequently, esp. as regards one's loyalties, interests, or affection : Web patrons are a notoriously fickle lot, bouncing from one site to another on a whim | the weather is forever fickle.
DERIVATIVES
fickleness |ˈfɪkəlnəs| noun
fickly |ˈfik(ə)lē| |ˈfɪk(ə)li| adverb
ORIGIN Old English ficol [deceitful] .
PD(Parkinson's Disease) oh yes, it can be fickle, unpredictable. Just ask someone who travels down the road with PD.
You say you don't know anyone with PD. Well I bet you do, even if you are not aware of it. It has been written that a person diagnosed with PD more than likely was afflicted eight or ten years before being told, "You Have Parkinson's Disease (that's not what you want to hear).
PD is more prevalent than most people realize. Young Onset P D is a growing concern. I was fortunate to not fall into that category and most fortunate to be slow at progressing since my diagnosis in 2000.
My journey with PD has taught me many things and introduced me to people that are amazing in their life and times with PD, patients, caregivers and medical professionals and researchers.
Yet, here we are, shaking the world and still no cure in sight. Hopefully the funds for research and care will not be cut in these turbulent times.
Journeying through uncharted waters, better days ahead.
adjective
changing frequently, esp. as regards one's loyalties, interests, or affection : Web patrons are a notoriously fickle lot, bouncing from one site to another on a whim | the weather is forever fickle.
DERIVATIVES
fickleness |ˈfɪkəlnəs| noun
fickly |ˈfik(ə)lē| |ˈfɪk(ə)li| adverb
ORIGIN Old English ficol [deceitful] .
PD(Parkinson's Disease) oh yes, it can be fickle, unpredictable. Just ask someone who travels down the road with PD.
You say you don't know anyone with PD. Well I bet you do, even if you are not aware of it. It has been written that a person diagnosed with PD more than likely was afflicted eight or ten years before being told, "You Have Parkinson's Disease (that's not what you want to hear).
PD is more prevalent than most people realize. Young Onset P D is a growing concern. I was fortunate to not fall into that category and most fortunate to be slow at progressing since my diagnosis in 2000.
My journey with PD has taught me many things and introduced me to people that are amazing in their life and times with PD, patients, caregivers and medical professionals and researchers.
Yet, here we are, shaking the world and still no cure in sight. Hopefully the funds for research and care will not be cut in these turbulent times.
Journeying through uncharted waters, better days ahead.
Monday, December 14, 2009
THE V A and PARKINSON'S DISEASE
Once again I am impressed with the Veteran's Administration Parkinson's program. They are truly on top of things and most cooperative and understanding of the various problems encountered by PD patients.
One of the best things since tips on shoelaces.
CHANGING PARKINSON'S MEDS. CAN BE SCARY.
In the past eleven years since I was diagnosed with Parkinson's Disease, I have endured the fear and panic of adding medications to control the symptons of PD (as we all know there is no cure yet). When you know you are signing on for a lifetime of putting more and more foreign things into your body--you worry and become concerned that this is just a "shooting from the hip" process.
Parkinson's is such a fickle disease, you hardly ever know what's around the corner, until you get there.
Well, my latest fun was weaning myself off one medication and adding another.
MISERY, that's what I call this past few days. I now await the open office hours of my PD specialist, hoping for an answer, but I do remember the Doctors are still practicing medicine.
I look forward to better days ahead.
'Till next time.
Parkinson's is such a fickle disease, you hardly ever know what's around the corner, until you get there.
Well, my latest fun was weaning myself off one medication and adding another.
MISERY, that's what I call this past few days. I now await the open office hours of my PD specialist, hoping for an answer, but I do remember the Doctors are still practicing medicine.
I look forward to better days ahead.
'Till next time.
Saturday, December 5, 2009
A LUCKY VETERAN--P.A.D.R.E.C.C.
The Veterans Administration should be proud of their participation in the research, education and treatment of Parkinson's Disease.
This journeyman with PD has finally made the move to become one of the lucky veterans participating in this all inclusive program.
I am just getting started and will update my progress and experiences along the way.
'til then,
HAPPY TRAVELS
This journeyman with PD has finally made the move to become one of the lucky veterans participating in this all inclusive program.
I am just getting started and will update my progress and experiences along the way.
'til then,
HAPPY TRAVELS
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