BE AWARE:
If it is not one thing it is just another. At least that is how I find it. Cold is bad for many PWP and now we have a quick swing into summer ( and it's only April) so I am now working my way through the 88 degree heat. The swing only brings stress and as I''ve said before, Stress is a Mess. Hoping for a less messy day tomorrow, but as we know PD is fickle and sometimes unpredictable.
Just so you know.
Thursday, April 8, 2010
Wednesday, April 7, 2010
APRIL IS PARKINSON'S AWARENESS MONTH/ VOCAL CORD CHECK
Well to all the followers of this journey, I must report today was a first for this PWP.
My P.A.D.R.E.C.C. Doctor has taken the time to order an audiology testing and an appointment with a speech pathologist. Both testing and consultations are completed. In the process they had scheduled me to see an ENT specialist..that was today's experience. I have been cleared to get state of the art hearing aids ( I have a symmetrical hearing loss) and then the nice Doctor proceeded to let me know the next procedure to view my vocal cords. A little numbing spray up the nose and down goes a lighted minicam through the nostrils to target.Thank goodness my cords are clear. Now I can look forward to a long course of therapy to overcome the effect of PD on my voice and speech.
I continue to be thankful for such a comprehensive approach to patients with Parkinson's.
THIS IS PARKINSON'S AWARENESS MONTH.
My P.A.D.R.E.C.C. Doctor has taken the time to order an audiology testing and an appointment with a speech pathologist. Both testing and consultations are completed. In the process they had scheduled me to see an ENT specialist..that was today's experience. I have been cleared to get state of the art hearing aids ( I have a symmetrical hearing loss) and then the nice Doctor proceeded to let me know the next procedure to view my vocal cords. A little numbing spray up the nose and down goes a lighted minicam through the nostrils to target.Thank goodness my cords are clear. Now I can look forward to a long course of therapy to overcome the effect of PD on my voice and speech.
I continue to be thankful for such a comprehensive approach to patients with Parkinson's.
THIS IS PARKINSON'S AWARENESS MONTH.
Saturday, April 3, 2010
APRIL IS PARKINSON'S AWARENESS MONTH
ARE YOU AWARE?
DO YOU KNOW WHAT IT IS ALL ABOUT?
DID YOU HAVE YOUR HEAD IN THE SAND?
BE AWARE.
LOOK ME IN THE EYE AND PROMISE TO BECOME INFORMED
IT IS SOMETHING YOU MIGHT ENCOUNTER, OLD OR YOUNG
Wednesday, March 3, 2010
A PD VACCINE? WHO KNOWS?
UNMC researchers make progress on Parkinson's vaccine
(3/02/2010) KHAS-TV - Parkinson's Disease affects a million Americans. And, there is no cure. But researchers at the University of Nebraska Medical Center are making progress.
Researchers are developing a vaccine that slows the degeneration of nerve cells in the brain that link to motor activity.
Early results in mice show improvement in damaged cells. The findings may give researchers more insight into what causes Parkinson's and a possible cure.
"This is not a vaccine that will cure it. This is a vaccine that will halt its progression," said Dr. Howard Gendelman.
It is unknown if long time sufferers would benefit from these findings. The vaccine is being tested on humans and will be tested at UNMC within the next month. FDA approval of any vaccine is still a few years away.
(3/02/2010) KHAS-TV - Parkinson's Disease affects a million Americans. And, there is no cure. But researchers at the University of Nebraska Medical Center are making progress.
Researchers are developing a vaccine that slows the degeneration of nerve cells in the brain that link to motor activity.
Early results in mice show improvement in damaged cells. The findings may give researchers more insight into what causes Parkinson's and a possible cure.
"This is not a vaccine that will cure it. This is a vaccine that will halt its progression," said Dr. Howard Gendelman.
It is unknown if long time sufferers would benefit from these findings. The vaccine is being tested on humans and will be tested at UNMC within the next month. FDA approval of any vaccine is still a few years away.
Friday, February 26, 2010
WINTER WONDERLAND or A WEEKEND TO WONDER
I WONDER IF THIS IS NOT ENOUGH SNOW YET?
I WONDER IF MY NEW PHYSICAL THERAPY REGIMEN WILL IMPROVE MY POSTURE AND P.D. SYMPTOMS?
I WONDER IF WE WILL GET GOOD NEWS ON MY WIFE'S ULTRA SOUND GUIDED CORE TISSUE SAMPLES ?
I WONDER WHEN THE WALL STREET/BANKING CHICANERY WILL REALLY COME TO AN END?
I WONDER WHAT CHANGE HAS TAKEN PLACE ?
I WONDER WHY I WONDER ?
I WONDER IF I AM THE LUCKY ONE ?
PD IS NOT CANCER AND THAT I DON'T WONDER ABOUT.
Friday, February 19, 2010
INSTANT CATARACTS or MY NEWEST PD CONCERN
NUMBNESS, TINGLING & BURNING SENSATION OR INSTANT CATARACTS.
Many years ago my wife and I dined at a now defunct but most wonderful Mexican restaurant in New York. We were served our Margharitas and they were the best. Without ordering a second drink, our host arrived with what seemed to be a sink sized drink for each of us. We took our time and enjoyed our freebie. We had ordered our food when we placed the original drink order and about an hour had passed since then. We were finally served and found out the freebie and long wait was due to the Immigration Service raid on the kitchen help left the restaurant without any help with the exception of our host and his partner.
We didn't seem to mind since we were half looped by the tub sized drinks.
The next morning I was wakened by my wife's agitated cries for help.....
She had developed INSTANT CATARACTS overnight.
All ended well, she forgot to remove her contact lenses (thanks to the tub sized drink).
What has this to do with PD and me, well it seems I have developed instant and painful numbness and a burning tingling in my right arm and hand. It had occurred every so often in the past and I was told it had to do with a pinched nerve in the neck. It seems we PWP have neck issues.
For the last three days it has not subsided nor lessened in the pain factor. I had a stressful 12 days of traveling in the storms (ice/snow), exhibiting in a less than productive show, driving back in ice/snow, shoveling out my car from under 20+ inches of snow and keeping our aging Molly dog from freaking out at the depth of snow where she normally "goes".
I don't know now if this is the result of a pinched nerve or if something else is going on. I don't recall all the side effects of my meds, but somewhere I remember seeing something on the subject of numbness.
I will contact my MDS about this. I have already had a neck and upper spinal MRI and she saw nothing to be alarmed at. The normal aging process, arthritis,etc.
Has any one out experienced this???
Many years ago my wife and I dined at a now defunct but most wonderful Mexican restaurant in New York. We were served our Margharitas and they were the best. Without ordering a second drink, our host arrived with what seemed to be a sink sized drink for each of us. We took our time and enjoyed our freebie. We had ordered our food when we placed the original drink order and about an hour had passed since then. We were finally served and found out the freebie and long wait was due to the Immigration Service raid on the kitchen help left the restaurant without any help with the exception of our host and his partner.
We didn't seem to mind since we were half looped by the tub sized drinks.
The next morning I was wakened by my wife's agitated cries for help.....
She had developed INSTANT CATARACTS overnight.
All ended well, she forgot to remove her contact lenses (thanks to the tub sized drink).
What has this to do with PD and me, well it seems I have developed instant and painful numbness and a burning tingling in my right arm and hand. It had occurred every so often in the past and I was told it had to do with a pinched nerve in the neck. It seems we PWP have neck issues.
For the last three days it has not subsided nor lessened in the pain factor. I had a stressful 12 days of traveling in the storms (ice/snow), exhibiting in a less than productive show, driving back in ice/snow, shoveling out my car from under 20+ inches of snow and keeping our aging Molly dog from freaking out at the depth of snow where she normally "goes".
I don't know now if this is the result of a pinched nerve or if something else is going on. I don't recall all the side effects of my meds, but somewhere I remember seeing something on the subject of numbness.
I will contact my MDS about this. I have already had a neck and upper spinal MRI and she saw nothing to be alarmed at. The normal aging process, arthritis,etc.
Has any one out experienced this???
Monday, February 15, 2010
WILL THE FAT LADY SING ? THAT IS THE QUESTION OF THE DAY.
The show is over. The anxiety of the trip to Nashville and the setup has passed. The shorter show schedule this year leaves us wondering who might have returned on Sunday (as is the custom at this show) to make their purchase. So, We ask will the fat lady sing? Time will tell.
While waiting for the answer we have new challenges. An unwanted but needed truck repair and a new winter storm to travel home with. Neither one is without tension and stress.
So goes the way of this President's day holiday.
The journey continues.
While waiting for the answer we have new challenges. An unwanted but needed truck repair and a new winter storm to travel home with. Neither one is without tension and stress.
So goes the way of this President's day holiday.
The journey continues.
Wednesday, February 3, 2010
FYI A PROBLEM FOR MANY.
Parkinson's disease research uncovers social barrier
Science Centric (3 Feb 2010 12:04 GMT) - People with Parkinson's disease suffer social difficulties simply because of the way they talk, a McGill University researcher has discovered. Marc Pell, at McGill's School of Communication Sciences and Disorders, has learned that many people develop negative impressions about individuals with Parkinson's disease, based solely on how they communicate. These perceptions limit opportunities for social interaction and full participation in society for those with the disease, reducing their quality of life. Pell's research offers the public a better understanding of the difficulties these patients face - as well as an opportunity to promote greater inclusiveness... [full story]
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